You can watch the full video of Novelette’s Story here (or down below).
Butterfly child
Each day you wake to a tainted frame
Wings so fragile you can hate how maimed
How hard it can be enduring all your pain
How lonely it can feel that no one understands your frame
I started writing poetry when I was in middle school. Poetry’s helped me to process my life and process my struggles, my joys, my fears, my sorrows. So it’s always been a source of strength and a way to just figure things out. Trying to make sense of the senselessness that can be life sometimes.
I volunteer with an organization called the Scarborough Centre for Healthy Communities. I’m a peer grief facilitator. I’m not a counsellor or therapist, I’m just a volunteer who was at a point on my grief journey where I feel willing and able to walk alongside others on their grief journeys. Because of EB, a lot of friends of mine have passed away. The volunteering I do at least helps me feel like even though it’s hard missing all the people that I miss every day, that at least I can use it in a productive way.
I am a poet, I am an analytical thinker and I am a passionate advocate for grief literacy.
My name is Novelette and I am thriving with EB.
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