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Building a Community. Making Friends. Sharing Stories.


Living With EB. Together.

Our Weakness Is Only Skin Deep

Epidermolysis bullosa (EB) is a group of genetic conditions that result in easy blistering of the skin and mucous membranes. It is estimated to affect 500,000 people worldwide. Children born with this disease are often called “Butterfly Children”, since their skin is as fragile as the wings of a butterfly.

The struggle is real. Yet, underneath the surface of this disease lies countless stories of strength, bravery and inspiration.

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We Believe

This generation of Butterfly Children will not feel ashamed and isolated.

They will live their life knowing others who have EB and the people around them will know more about EB than ever before. This generation will have role models they can look up to, and form life-long friendships within our EB community. The emotional connections and companionships they will know, will strengthen their lives and help them form personal goals and achievements. We believe (that no matter how bad the disease is) everyone thrives when they feel connection and belonging. This generation of Butterly Children will live inspirational lives full of purpose. 

Join Us For Our Next Event!

We are grouping together on Friday October 25 at 6:30pm at the Palais Royale in Toronto and we want you to join us! MiaThrives is hosting a celebration of thriving artistic expression within our EB community. Joined by Dr. Pope, Maya Spencer-Berkeley and 10 inspirational artists who have found their purpose while living with EB. Please join us.

We Thrive Better
When We Fly Together.

Every day we have the choice to either survive or thrive. Let’s celebrate our accomplishments and share our stories with one another.
Here’s a few stories of inspiration!




The Sky’s The Limit

We are a Canadian company on a mission to positively impact those living with EB. We are touching the lives of our community through books, videos, events, products and fun stuff along the way. We ask that you help us make a difference and donate to MiaThrives. You will be funding our initiatives to help Butterfly Children of this generation feel like they belong and live a thriving life full of purpose.




Visit Us

30 Quarry Ridge Rd, Barrie, ON L4M 7G1

Call Us

(647) 355-2285

Email Us

Are you a social butterfly?