Emily Boros-Rausch

Creative Director / Chief of Imagination

Emily Boros-Rausch was working on her thesis—designing fashionable medical bandages— when she was introduced to Melissa; a connection between her mom and board member Devon’s mom. Melissa was the first mother Emily had ever met who shared her rare disease of Epidermolysis Bullosa (EB).

Three years later, when Melissa was seeking a creative team member for MiaThrives, she knew Emily, with her natural talents and a degree in Material Art and Design from OCAD University would be perfect for the job.

In her role as MiaThrives’ Creative Director, Emily manages Kaleidoscope Kids Crafts, where she teaches Butterfly Children to make beautiful crafts. Emily is also MiaThrives’ Social Media Director as well as co-host and editor of the MiaThrives Podcast. One of the gifts to come from Emily’s EB was that she became an excellent problem solver. On behalf of MiaThrives, Emily shares EB Hacks blogs, which illustrate creative ways to make living with EB more comfortable. Emily graciously contributes her personal experience and knowledge to help members of the EB community. Emily’s favorite part about her role at MiaThrives is connecting with the community both in person and online.

Emily is a passionate world traveler, but she’s also happy spending time at home with her husband Josh, Son Milo, and dog Luna. Emily is passionate about sharing her personal experiences with EB and motherhood with other women in the EB community. Emily’s goal through her work with MiaThrives is to inspire young people living with EB to know that they are in charge of what defines them. The sky is the limit!

Emily’s Butterfly

Emily is represented by the Anaea Nessus Butterfly, which has pink, blue, and dark purple wings. Emily’s favourite colour is purple, and all of these colours can be found in our visual branding. Pink is a colour symbolic of friendship and approachability, exactly what we need in the person responsible for our community outreach and social media. Seeing a blue butterfly symbolizes fulfilling one’s purpose in life. As an artist, Emily has found purpose by combining her creative abilities with her personal experience with EB, to lead to a tailor-made role for her at MiaThrives.