Ed Vandyk is a musician with DDEB and was one of the Kaleidoscope artists. You can click here to watch his story. For highlights from the Kaleidoscope Gala check out the e-book here.
Ed grew up playing ice hockey and from his personal experience falling on ice was less harmful to his skin. When he fell there was less direct impact and more of a slide. Paired with his father hack it helped prevent injury!
You can watch the full video here (or down below).
Ed’s father would take sheepskin and cut it to size and hot glue it into his sports equipment. From padding to skates this helped prevent friction and injury. You can purchase large pieces from Ikea, click here for the link.
We would love to hear from you if this is something you’ve tried and it works for you! Also, feel free to let us know if you have any other EB Hacks!
MiaThrives presents our EB Hacks vlogs. They offer tips and tricks to live your life to the fullest with Epidermolysis Bullosa. Connect with us on our Facebook, Instagram, Youtube. If you’re new here click to learn more about our story.
Join us and let’s thrive together!
Thank you dfor signing up to our eNewsletter for MiaThrives. Please note you can opt out at any time.
We will get back to you as soon as possible.
100 King Street West Suite 5700, Box. 219 Toronto, Ontario M5X 1C7
©2023 - All rights reserved to MiaThrives | Designed by DsignPoint | #XpertzPowered