Hey Guys, it’s Emily here from MiaThrives!

We are very excited to be launching the first of many free downloadable PDF resources for the EB community. The first is an EB-friendly Hospital Checklist. Navigating pregnancy with EB has had its challenges, such as struggling to find resources and information. I have been dedicating time to researching and look forward to sharing these findings with the community to hopefully save others time.

You can watch the full video here, or down below.

Each item has been carefully chosen for the checklist such as Mama with EB specialty items, a List for Baby with EB specialty items, and a shorter list for parter\support person.

Many of the items will be elaborated on in future EB Hacks videos, such as a postpartum video where I will discuss what was most useful in my recovery. I plan on sharing my EB Birth Story and journey trying to breastfeed with DDEB. We are working with some other EB mamas with different forms of EB to bring a wider range of experience and advice, stay tuned!

DOWNLOAD THE PDF

We would love to hear from you if you tried any of these hacks or have any hacks you would like to share with the EB community!

MiaThrives presents our EB Hacks vlogs. They offer tips and tricks to live your life to the fullest with Epidermolysis Bullosa. Connect with us on our Facebook, Instagram, Youtube. If you’re new here click to learn more about our story.