Cindy Mateus

Web Strategist

Cindy Mateus is the consummate entrepreneur. It is her passion for entrepreneurialism that actually led to her involvement with MiaThrives. A couple of years ago Cindy published an incredible article, which MiaThrives Founder Melissa saw and reached out to Cindy about. The two ladies started what would become the beginning of a beautiful personal and professional relationship between Cindy and the MiaThrives team.

Cindy was formally diagnosed with Epidermolysis Bullosa in 2016 at 26 years of age, later than most EB patients. She was born in Luxemburg where there was no active EB community and little EB awareness. Cindy went to school in Belgium and majored in web design and multimedia at Albert Jacquard school. After graduation, Cindy moved to Spain in 2017 due to her love of the beach and sunshine where she was inspired to start her own design studio called DsignPoint. Once in Spain, Cindy joined DebraSpain and learned more about the EB community and her own diagnosis. Since actively joining the EB community Cindy has been dedicated to learning about EB, sharing her story and creating awareness about EB which inspired her to start a Blog in 2019 called MyButterflyLife.

Cindy is passionate about art, music, nature and travelling which all culminate to inspire creativity in her work. She loves being an entrepreneur and feels it brings the perfect balance between EB life and work. Cindy cherishes spending time with her family and friends and loves her feline babies, her two cats Hyndi and Misty.

Through her blog and her work at MiaThrives Cindy wants to use her passion for web design to help the EB community worldwide by making a more visible platform. Cindy officially joined the MiaThrives team in 2020 and continues to serve as the MiaThrives’ Web Strategist—Who better than a web designer that has firsthand experience living as a person with EB to be responsible for ensuring the MiaThrives website thrives!

Cindy’s Butterfly

Cindy is represented by The Pieris rapae Butterfly, which has white wings. White butterflies represent transformation and hope, and Cindy deeply believes in that philosophy. Epidermolysis Bullosa requires a constant transformation in her life and she will never stop hopping that someday we will find a cure for EB. The white color represents freshness and simplicity, values that Cindy tries to bring in her work and life. In Feng Shui, white is considered a powerful color; it creates harmony and balance in spaces and environment. Fun fact: Cindy loves to decorate her house with Feng Shui methods are chooses light coloured furniture, textile and woods.