Hey Guys, today Julia joins us in sharing an EB friendly Yoga Class You may know Julia from her Instagram account @yogijewels. She wanted to focus on yoga and stretches with ease and lots of relaxation. Yoga can take many different forms and modifications to suit your EB needs! Julia has a special connection to …
Hey, Guys, it’s Emily here from MiaThrives! Today I am going to talk about one of the only bras that have ever worked well for my skin! Bras can be a tricky thing to shop for when you’re living with EB. Lots of extra aspects to keep in mind to find a product that doesn’t …
Hey, Guys, it’s Emily here from MiaThrives! My partner and I recently bought our first home and are so excited for this new adventure. A few new challenges have come up as we are doing some home improvements. There has been trial and error for the tasks and tools I can and can’t do or …
Today Angie joins us to share her EB Hack! Angie is Melissa’s Mother the founder of MiaThrives and Mia’s grandmother! This is a Hack she has now used for two generations. You can watch the full video here (or down below). Melissa was inspired by her mother’s selflessness and ability to advocate for the EB …
Hey, it’s Emily here from MiaThrives with Special Guest Tessa! Tessa was born with Simplex EB as well as her Father and Brother. She is an artist and was featured at the Kaleidosopce Gala in October 2019. You can watch the full video here (or down below). Click here for Tessa’s full Kaleidoscope Video. You …
