Hey Guys, it’s Emily here from MiaThrives! We are very excited to be launching the first of many free downloadable PDF resources for the EB community. The first is an EB-friendly Hospital Checklist. Navigating pregnancy with EB has had its challenges, such as struggling to find resources and information. I have been dedicating time to …
Hey Guys, it’s Emily here from MiaThrives! I am 30 weeks pregnant and starting to prepare some items for my little one. Since I have DDEB there is a 50% chance the baby will also have EB. The bath items I have picked up are with a butterfly baby in mind. We hope you find …
Hey Guys, it’s Emily here from MiaThrives! Today I am going to discuss options for reducing scars and stretchmarks. Living with EB it’s impossible to completely avoid scars, however, there are steps that can reduce the redness and visibility. Stretchmarks are also genetic, so if your family member has them, that might mean you have …
Hey Guys, it’s Emily here from MiaThrives! Today I’m going to talk about a product a friend recently recommended to me and I have been loving. It is a roll-on balm that is infused with CBD from a company called Delush. Delush is a Canadian Vancouver based Company that handmakes all their products. They are …
Melissa (founder of MiaThrives) and I are both in London for the EB Wolrd Congress 2020. Today I am going to talk about an easy hotel hack that you can do from anywhere in the world! You can watch the full video here (or down below). Heightened risk of infection while travelling When you …
Hey, Guys, it’s Emily here from MiaThrives with special guest Ed! Ed Vandyk is a musician with DDEB and was one of the Kaleidoscope artists. You can click here to watch his story. For highlights from the Kaleidoscope Gala check out the e-book here. Ed grew up playing ice hockey and from his personal experience …
