Hey Guys, it’s Emily here from MiaThrives! I am 28 weeks pregnant and starting to prepare some EB Hacks for the baby if they have EB. With DDEB the child has a 50% chance of being born with EB. Today I go over a hack that can be used for car seats, straps, or any …
Our first-ever Kaleidoscope Gala From the bottom of our hearts, thank you for attending the first-ever Kaleidoscope Gala in support of the EB Community. Your presence at our event meant the world to us and we think you’ll agree that the evening was a huge success! We wish to extend a special thanks to our …
Our invitation for Snow Day Beat the winter blues by joining us for a fun day out in the snow at Snow Valley Ski Hill. Our day includes outdoor activities, crafts, food, and indoor fun as well. Snow much fun! Connect with us on our Facebook, Instagram, Youtube. If you’re new here click to learn more …
Our Golf Tournament Our 2019 Golf Tournament was a great success. Every year we see our EB community grow, both through the support of our organization and through the connection with other Butterfly Children. MiaThrives is all about finding other families who struggle with EB and providing support and relationship. That’s when we really feel …
Mia helps her doll apply band-aids The Founder of MiaThrives Melissa helps to put band-aids on her daughter Mia as part of her daily skincare routine living with EB. Melissa has thought of this fun game involving her doll to put a positive twist on this sometimes difficult time for her daughter. You can watch …
