Children with EB

snow day 2019 miathrives eb

Snow Day 2019

Our invitation for Snow Day Beat the winter blues by joining us for a fun day out in the snow at Snow Valley Ski Hill. Our day includes outdoor activities, crafts, food, and indoor fun as well.   Snow much fun!   Connect with us on our Facebook, Instagram, Youtube. If you’re new here click to learn more …

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miathrives golf tournament 2019

MiaThrives Golf Tournament

Our Golf Tournament Our 2019 Golf Tournament was a great success. Every year we see our EB community grow, both through the support of our organization and through the connection with other Butterfly Children. MiaThrives is all about finding other families who struggle with EB and providing support and relationship. That’s when we really feel …

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