Promote the quality of life of members of the EB community.
Educate the general public and create awareness of the challenges faced by individuals with EB.
Empower, inspire and motivate families affected by EB. Develop and implement recreation, education and social integration programs in our community such as our MiaThrives Podcast, EB Hacks, visual storytelling, kaleidoscope videos and social media platforms.
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Mia, a Butterfly Child, was born with EB as were her mother and her grandfather. This book, written by her mother (our founder), tells the story of who Mia is and the hope to raise awareness about Butterfly Children.