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Liz Thriving with EB

You can watch the full video of Liz’s Story here (or down below).

 

Liz’s Story

 

One of the best things about my parents: they knew from day one that they weren’t going to hold me in a bubble. They knew they had this fragile child and they wanted to protect her but they didn’t want to hold me back. And that is the biggest blessing they could have ever given me. The chance to live.

My name’s Liz Trinnear. I am a television host in Canada. What people may not know about me is I suffer on the daily from a rare skin condition called Epidermolysis Bullosa. And it’s a daily struggle. You don’t realize how incredible your parents are until you grow up and you kind of reflect on those moments. I remember squeezing my Dad’s hand. My Mom was like “okay, take a deep breath! Squeeze Dad’s hand a bit harder because this is going to be a sore one”. And she’d have to open up the wound and do the dressing and do the ointments and all that. I would just remember holding on to my Dad’s hand.

You just want to be treated like a normal kid. The fun fact is nobody is normal. We all have a different part of our life that we struggle with. I’m so fortunate to work in a field that I love. Like, I absolutely love making television and I love being on set.

I have a crew of people who are so supportive. They understand my limitations and they know that we have to put insoles in my shoes. We have to have slippers on standby. Only soft materials on my skin. I might want to wear that dress but, okay, we’re going to have to figure out how I can to make it work for my condition.

Having EB has taught me to just look at the world with a kinder eye. And I would not take that back for anything.

My name’s Liz Trinnear and I’m thriving with EB.

 

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