Inspiring Stories

Did you know that a group of butterflies is called a kaleidoscope? That’s why we call these our kaleidoscope stories: we are here to support and encourage one another. Join our kaleidoscope and be inspired by these amazing EB thrivers! After all, we thrive better when we fly together.

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Lucy’s Story

Mia Thrives mayas story
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Maya’s Story

mary's story mia thrives
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Mary’s Story

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Liz’s Story

tessa's story miathrives
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Tessa’s Story

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Ed’s Story

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Melissa’s Story

deanna's story miathrives
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Deanna’s Story

chris' story miathrives
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Chris’ Story

novelette's story miathrives
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Novelette’s Story

emilys story miathrives
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Emily’s Story

Are you an EB Thriver?

If you’re living with EB, you can be a support and inspiration to others, simply by sharing your story. You never know how you can encourage and empower those around you. If you’d like to be highlighted in a Kaleidoscope Story, we’d love to hear from you.

Our goal with MiaThrives is to help future generations of Butterfly Children grow up knowing that their weakness is only skin deep, and that they can do amazing things with their lives. We are so grateful to have you on our journey.

Make a donation

Support MiaThrives by donating that will make a meaningful contribution to the lives of people living with EB and their families.
All donations over $25 will receive a charitable tax receipt. Your gift will allow MiaThrives to continue to provide comprehensive programs and services to help children with EB thrive and achieve their full potential. Your donation will also help us to expand our offerings and plan for engaging in-person and online events in 2023.