KALEIDOSCOPE VIDEOS

Inspiring Stories

Did you know that a group of butterflies is called a kaleidoscope? That’s why we call these our kaleidoscope stories: we are here to support and encourage one another. Join our kaleidoscope and be inspired by these amazing EB thrivers! After all, we thrive better when we fly together.

Play Video

Lucy’s Story

Mia Thrives mayas story
Play Video

Maya’s Story

mary's story mia thrives
Play Video

Mary’s Story

Play Video

Liz’s Story

matt's story mia thrives
Play Video

Matt’s Story

tessa's story miathrives
Play Video

Tessa’s Story

Play Video

Ed’s Story

Play Video

Melissa’s Story

deanna's story miathrives
Play Video

Deanna’s Story

chris' story miathrives
Play Video

Chris’ Story

novelette's story miathrives
Play Video

Novelette’s Story

emilys story miathrives
Play Video

Emily’s Story

Are you an EB Thriver?

If you’re living with EB, you can be a support and inspiration to others, simply by sharing your story. You never know how you can encourage and empower those around you. If you’d like to be highlighted in a Kaleidoscope Story, we’d love to hear from you.

Our goal with MiaThrives is to help future generations of Butterfly Children grow up knowing that their weakness is only skin deep, and that they can do amazing things with their lives. We are so grateful to have you on our journey.