Emily’s Story

emilys story miathrives

Emily’s Story | Thriving with EB

You can watch the full video of Emily’s Story here (or down below).



Artist at heart

I’ve always loved working with my hands and creating art, and just kind of as long as I can remember, that was just what I did and what I will hopefully always continue to do. I started a small business about four years ago making hand-printed greeting cards for all occasions. I think there’s something special about getting a card that’s handmade. I started also making terrariums and flower arrangements.


A love of travel

As long as I can remember I’ve loved travelling. I got rid of my apartment. I sold all my stuff. That’s kind of when I started travelling full-time. Sometimes doing certain things with EB like travelling can be uncomfortable like dealing with heat and blisters.


Growth through EB

I feel like EB has shaped me into being a problem solver. When you want to do something and there are a few other things in your way, like how am I going to make this work for me and for my skin? That really helped me to be like okay you can do this, it just might be a little bit differently.



I love to collect little rocks and pieces of wood and things from along our travels. Sometimes I will literally mail myself rocks from other places in the world. I just love taking a little bit of the outdoors and bringing it in.

My name is Emily and I’m thriving with EB.


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