You may know Julia from her Instagram account @yogijewels. She wanted to focus on yoga and stretches with ease and lots of relaxation. Yoga can take many different forms and modifications to suit your EB needs! Julia has a special connection to the EB community, read her story below!
You can watch the full video here or at the bottom of the page.
I have witnessed the life of EB first hand. My younger brother Arnold was born with EB… I remember being very young and wanting to help. I wanted to take his pain away, we were extremely close growing up. I felt helpless at times because, with EB, there are times that there is only so much you can do. I was older than Arnold by 11 months… Arnold was taken from this world 5 days after his 10th birthday. Today I share my story to spread awareness about the fight against EB. I have been accepted by the EB community with open arms and so I do my best to give back. I love nothing more than to bring joy and peace to others. Starting yoga I never expected to be making a video for the EB community, but given the opportunity, I accepted it immediately because I know personally yoga has brought me peace. I hope everyone enjoys these yoga stretches & incorporates them into daily life to bring acceptance, love, and joy.
Namaste Julia
We would love to hear from you if this is something you’ve tried and if it works for you! Also, feel free to let us know if you have any other EB Hacks!
MiaThrives presents our EB Hacks vlogs. They offer tips and tricks to live your life to the fullest with Epidermolysis Bullosa. Connect with us on our Facebook, Instagram, Youtube. If you’re new here click to learn more about our story.
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