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Your Support Means The World To Us

Living with a rare skin disease has its challenges, but those challenges seem so much better when you know that you aren’t alone. Your generous donation provides us with financial support, but more importantly, it sends a message to everyone living with EB that they are accepted in a world that doesn’t always understand them. We thank you from the bottom of our hearts. 

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Share the Story


Mia, a Butterfly Child, was born with EB as were her mother and her grandfather. This book, written by her mother (our founder), tells the story of who Mia is and the hope to raise awareness about Butterfly Children.



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(647) 355-2285

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