Hey Guys, it’s Emily here from MiaThrives! I am a bath lover and it is a crucial step in taking care of my EB skin. When I first found out I was pregnant I did some research on safe bath practices while pregnant. I will share what has worked well for me but make sure …
Hey Guys, it’s Emily here from MiaThrives! I am 25 weeks pregnant and today I am going to chat about maternity clothing. In general, I have a difficult time finding pants that don’t irritate the skin on my lower back. Due to Covid, it is more challenging to get into stores to try on clothing. …
Hey Guys, today Julia joins us in sharing an EB friendly Yoga Class You may know Julia from her Instagram account @yogijewels. She wanted to focus on yoga and stretches with ease and lots of relaxation. Yoga can take many different forms and modifications to suit your EB needs! Julia has a special connection to …
Hey Guys, it’s Emily here from MiaThrives! I am 22 weeks pregnant and excited to start sharing some hacks about pregnancy and newborns. The first video of the series is sharing some information I gathered about genetic testing options. Since I have DDEB there is a 50% chance the baby will also have EB. One …
Hey Guys, it’s Emily here from MiaThrives! After a little break, I am excited to be back with weekly EB Hack videos offering tips and tricks to living your life to the fullest with Epidermolysis Bullosa. Today’s hack will take you step by step through making an easy four-ingredient Bath bomb. You can customize the …
The MiaThrives Team was thrilled to receive so many amazing nominations during the Angela’s Angels campaign 2020. There are so many incredible caregivers and members in the EB community. We were touched by so many stories that the task of choosing a winner became very difficult. Due to the generosity of one of our sponsors, …
The MiaThrives Team was thrilled to receive so many amazing nominations during the Angela’s Angels campaign 2020. There are so many incredible caregivers and members in the EB community. We were touched by so many stories that the task of choosing a winner became very difficult. Due to the generosity of one of our sponsors, …
The MiaThrives Team was thrilled to receive so many amazing nominations during the Angela’s Angels campaign 2020. There are so many incredible caregivers and members in the EB community. We were touched by so many stories that the task of choosing a winner became very difficult. Due to the generosity of one of our sponsors, …
Cause the Wave Pearl Jam Movement is a division that raises awareness and funds for HealEB benefiting EB Research Partnership. Click here to learn more. Honoring EB Awareness week 2020 Artist Tim Au-Yeung donated his time and artistic skills to collaborate on a series of paintings for Cause the Wave. The eye-catching 16×16 portraits show …
Cause the Wave in collaboration with Tim Au-Yeung Read More »
Hey Guys, today Rachel joins us to share her cooking hacks! Rachel has RDEB that has caused her fingers to fuse together but that hasn’t stopped her from doing many things including cooking. She is currently in culinary school and through trial and error has found methods of cutting that work for her. You can …
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All donations over $25 will receive a charitable tax receipt. Your gift will allow MiaThrives to continue to provide comprehensive programs and services to help children with EB thrive and achieve their full potential. Your donation will also help us to expand our offerings and plan for engaging in-person and online events in 2023.
