January 19-23 2020 in London, UK Melissa the Founder of MiaThrives and Creative Director Emily had the amazing opportunity to attend the first-ever Global EB World Congress. Over 700 people attended from around the world, and we were able to gain new knowledge about EB, discover research and treatments, and connect with the community. For …
It’s Melissa here! We’re at the EB World Congress in London! Emily and I have had the amazing opportunity to attend the first-ever EB World Congress in London England. We have learned a lot about new research and technology being done to help make life more comfortable for those living with EB. It has also …
Melissa (founder of MiaThrives) and I are both in London for the EB Wolrd Congress 2020. Today I am going to talk about an easy hotel hack that you can do from anywhere in the world! You can watch the full video here (or down below). Heightened risk of infection while travelling When you …
Hey, it’s Emily and Mia here! Today we are going to show you how to make an easy butterfly stamp using items you probably already have around your home or can pick up from the dollar store. This craft from beginning to end only takes only 10 minutes! You can watch the full tutorial video …
The skin on my feet has always been a challenging area for me. This is a common issue for those living with EB. Having the right pair of socks can help prevent friction and overheating, therefore preventing blistering. Extra padding on socks can also act as an extra layer of protection for sensitive areas. This …
A few years ago my partner and I lived in Goa, India working for another non-profit organization. During our time there I learned a few new EB Hacks. One of those Hacks is the wonderful natural healing properties of turmeric! Turmeric has many uses and can be applied directly to the skin mixed with creams. …
Deanna Molinaro shares her Kaleidoscope kids crafts Deanna created a Kaleidoscope Butterfly painting that was featured at the MiaThrives 2019 Kaleidoscope Gala. It was a night of celebrating the arts within the EB community. One of the techniques she used to create the artwork was a stencil. Deanna shows step by step how you can …
I’ve always loved arts and crafts. Especially growing up with EB, I couldn’t always participate in sports or recess but something I could always do was arts and crafts. MiaThrives has been really trying to celebrate how creative the EB community is. And they just had a gala celebrating 10 artists with EB. Now, Kaleidoscope …
Hey, Guys, it’s Emily here from MiaThrives! Today I’m going to talk about Aquaphor, a product I started using fairly recently. I got it through Debra Canada they sent out some EB care packages. This was one of the products and I absolutely love it. You can watch the full video here (or down below). Aquaphor …
This week’s Kaleidoscope Kids holiday craft by Melissa Vassallo Idiens, the founder of MiaThrives! Holidays are a great time to relax and do some crafting with your family and friends! Follow along to make a reindeer holiday craft that can be used as table decoration or turned into an ornament for your Christmas tree. What …
